Update on Mark Kelly – from Carla Kelly 08.14.11

Friends and Family,

This week has been a difficult one for Mark. He has an infection that he has been fighting and a lot of abdominal pain.  Liz is keeping him as comfortable as possible with medications.  Some of the drugs will cause him to not be alert enough to effectively communicate with his computer.

Mark can no longer blink on demand, so his “eye gaze” technology has had to take over.  He gazes at a phrase or letter to let us know what he needs.  The computer will sometimes put up things that he does not want, so we have to wait for him to activate the “speak” part of the screen in order to know what he needs.

This morning Mark called all of us together. I had written him a letter last night to make sure that I expressed all the feelings of my heart to him.  I just wanted him to know the thoughts of my heart and how fortunate I have been to be his mother.   He asked Liz to read the letter to his family as we were all gathered together.  After the letter was read, Mark’s brothers and sisters and his Dad all expressed the feelings of their hearts and the great love that they shared for him.  Needless to say, it was an emotional time with many tears shed by all of us, including Mark.

Mark clenches his teeth together and so Liz has not been able to suction him adequately. He has bitten up the insides of his mouth, tongue and lips.  This is all involuntary and we are trying to keep this from happening by the use of medications etc.  His lung capacity is weakening also, just as we knew it would from the progression of the disease.  We have had many anxious moments this week as we have tried to calm him when he cannot breathe.

Mark is fighting this disease with all he has in him.  This is what he has always been, a fighter to the end. He has always had the “never give up” mentality.

This is why he has achieved so much in his life. He has kept at it until the task was accomplished.

We do not know how much time he has left.  He could go on for a few more months or it could be a matter of days.  It is in the Lord’s hands now.

If you would like to send him a message, you can email Liz or put it on his facebook page.  You could also just send a reply to this email and I will read the messages to him.

Thank you all so much for your prayers and support through this journey with Mark.  We love you all and feel your love in return to us, Feel free to forward this message to whoever you think would be interested.

Much love,  Carla Kelly